Who We Are
Led by families, guided by science
The UNC13A Foundation was started by families who wanted better answers than they were given. This is who carries that work forward today.
Start Here
Four ways to get to know us
Read the founding story, meet the people governing and advising the foundation, and see who we work alongside.
Welcome Letter
A letter from our founders to every family who lands on this page.
Read the letter →Board of Directors
The families and volunteers who govern the foundation.
Meet the board →Medical Advisory Board
The clinicians and researchers who guide our research priorities.
Meet the advisors →Staff & Partners
Day-to-day staff and the organizations that partner with us.
See staff & partners →