UNC13A Foundation
Hope Beyond the Gene
We support families navigating a UNC13A diagnosis with research funding, trusted information, and a community that understands. No family should have to chart this course alone.
Our Mission
Every family deserves a clear map and good company.
A UNC13A diagnosis often arrives with more questions than answers. The UNC13A Foundation exists to close that gap — funding research that matters, translating the science into plain language, and connecting families to one another.
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Read About UNC13AFor Newly Diagnosed Families
Your journey, step by step
However you arrived here, this is where the path gets clearer.
Get the diagnosis
[Placeholder copy: what a UNC13A diagnosis typically looks like, and what questions to ask your care team.]
Join the registry
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Learn the science
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Find your community
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Who We Are
Led by families, guided by science
Our Board of Directors and Medical Advisory Board steer the foundation's work.
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Research
Where the science stands today
We fund and track research so families don't have to comb through journals alone.
Awarded Grants
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View GrantsClinical Trials
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See TrialsPatient Registry
[Placeholder: why joining the registry matters for accelerating research.]
Join the Registry