Family Welcome Packet
For families who just received a diagnosis
One document with everything we wish we'd had on day one.
What's Inside
The packet covers
- [Placeholder: what UNC13A is, in plain language]
- [Placeholder: questions to ask your care team]
- [Placeholder: how to join the Family Registry]
- [Placeholder: how to find a regional meetup or online group]
- [Placeholder: glossary of common terms]
PlaceholderCover image of the welcome packet PDF.